That’s Medicaid
Health insurance coverage provides people with access to the care they need—when they need it. That’s Medicaid shares stories of people helped by Medicaid at critical points in their lives.

When You Advocate for Your Needs

A Lifeline

Kaui R. / Ewa Beach, Hawaii

Her story in four photos

“We would not be able to do this without Medicaid.”

Shortly after Kaui’s daughter was born she was diagnosed with type-1 spinal muscular atrophy, a rare disease in which children often die within two years because of weakness and wasting in the voluntary muscles.

Following the birth Kaui and her husband feared the needed care would be beyond their means. They were eventually approved for a Medicaid waiver, which provided case management, habilitation, and a health aide, as well as specialized food, a ventilator, and a wheelchair.

Kaui is now a parent-advocate for a local organization, helping others obtain crucial health services and, as she says, “do what is best for their child.”

The job also offers relief during the pandemic because she and her husband are able to work from home, care for their daughter, and manage telehealth visits. “We would not be able to do this without Medicaid,” she says.

Video: Hear Kaui's Story in Her Own Words